Capitol Alert: Disability-rights advocates flock to Capitol

Capitol Alert: Disability-rights advocates flock to Capitol for day of lobbying

 

A flier at the event listed some key issues affecting Californians with disabilities, including:

• Funding for In-Home Supportive Services, Medi-Cal, and Supplemental Security Income (SSI) programs.
• Senate Bill 320: Would require health plans and health insurers to provide coverage for certain treatments involving acquired brain injuries.
• Senate Bill 330: Would require mental health to be included in the next revision of California's health education framework.
• Senate Bill 468: Would require creation of a "self-determination program" that would allow consumers of regional centers to use an individual budget for purchasing services and supports.
• Senate Bill 391: Would impose a $75 fee on the recording of various real estate documents to generate revenue for affordable housing.
• Senate Bill 651: Would require investigators of state developmental centers and state hospitals to authorize a sexual assault forensic examination for any resident suspected of being abused.
• Senate Bill 705: Would bolster funding for the Disabled Students Program at community colleges.
• Senate Bill 22: Would require health plans and health insurers to submit annual reports certifying compliance with mental health parity requirements.
• Senate Bill 550: Would require adoption of future building standards to boost the number of residential public housing units containing mobility and communications features for people with disabilities.
• Assembly Bill 420: Would restrict the authority of a school superintendent or principal to suspend or expel a student for "willful defiance."
  
  Read more here: http://blogs.sacbee.com/capitolalertlatest/2013/05/disability-rights-advocate-flock-to-capitol-for-day-of-lobbying.html#storylink=cpy

Occupy CFS » 2012 NIH Spending on CFS Studies

Occupy CFS » 2012 NIH Spending on CFS Studies

 

"To make it worse, three of the grants NIH included in the 2012 ME/CFS list are not actually related to ME/CFS"

 

Same-old, same-old, they spend less per-patient on CFS research and some of that isn't even researching CFS.

 

Patients need to demand funding parity with similar diseases, such as MS.

Listen to Dr. Peterson

Listen to Dr. Peterson, who has treated an astounding 9,000 ME/CFS patients, as he implores FDA to speed treatments to patients who have waited 30 years for the first FDA-approval. We have 25 years of science identifying low Natural Killer Cell function as a worldwide marker and clinical endpoints to measure treatments. We need FDA's leadership.

http://simmaronresearch.com/2013/05/dr-petersons-call-for-a-therapeutic-strategy-at-fda/

Metabolism Math: Why Counting Calories Doesn't Add Up

Metabolism Math: Why Counting Calories Doesn't Add Up

 

A body dealing with chronic illness is already compromised. Among other things, the inflammation we experience affects our ability to process, absorb, and put the nutrients we consume to use. Because of this, many of us are (unknowingly) malnourished. Due to an unhealthy digestive system, we may not be able to efficiently absorb the healing nutrients we need. This contributes to a cascade of systemic (throughout the body) problems including immune system dysfunction, hormonal dysfunction, and an inability to effectively eliminate toxins from the body.

I remark in my book, FibroWHYalgia, that fibromyalgia should be referred to as "Systems Gone Berserk Syndrome." While I was poking fun at the inability to define our condition in just one word, the fact is that fibromyalgia does affect every part of the body. The fibromyalgia body reveals significant imbalances within each body system. Restoring balance is therefore not easy, but oh-so worth it.

I Remember Me Movie Review & Film Summary (2001) | Roger Ebert

 

I Remember Me Movie Review & Film Summary (2001) | Roger Ebert

 

Film convinces Ebert that CFS is real.

 

"TV comics still joke about the disease as a form of laziness. Ironic, isn't it, that Kim Snyder wasn't too lazy to make this film--while the CDC and the medical establishment are only now stirring into action."

 

* * *

Ironic, isn't it, that patients aren't too lazy to write books and blogs and letters to elected officials begging for research funding, while doctors are too lazy to think beyond "depression" in looking for a diagnosis.......

 

 

DCAD -- May 22, 2013

Don't miss Disability Capitol Action Day on May 22, 2013 in Sacramento! http://www.scnetca.org/news-topics/?id=261 #dcad

Facebook Link: http://www.scnetca.org/news-topics/?id=261

 

Please tweet or Facebook the above...

How to Reduce Inflammation

 

5 Tips for How to Reduce Inflammation - KrisCarr.com

 

Many CFS patients have elevated C-Reactive Protein, evidence of infection or inflammation.