Occupy CFS » 2012 NIH Spending on CFS Studies

Occupy CFS » 2012 NIH Spending on CFS Studies

 

"To make it worse, three of the grants NIH included in the 2012 ME/CFS list are not actually related to ME/CFS"

 

Same-old, same-old, they spend less per-patient on CFS research and some of that isn't even researching CFS.

 

Patients need to demand funding parity with similar diseases, such as MS.

Listen to Dr. Peterson

Listen to Dr. Peterson, who has treated an astounding 9,000 ME/CFS patients, as he implores FDA to speed treatments to patients who have waited 30 years for the first FDA-approval. We have 25 years of science identifying low Natural Killer Cell function as a worldwide marker and clinical endpoints to measure treatments. We need FDA's leadership.

http://simmaronresearch.com/2013/05/dr-petersons-call-for-a-therapeutic-strategy-at-fda/

Metabolism Math: Why Counting Calories Doesn't Add Up

Metabolism Math: Why Counting Calories Doesn't Add Up

 

A body dealing with chronic illness is already compromised. Among other things, the inflammation we experience affects our ability to process, absorb, and put the nutrients we consume to use. Because of this, many of us are (unknowingly) malnourished. Due to an unhealthy digestive system, we may not be able to efficiently absorb the healing nutrients we need. This contributes to a cascade of systemic (throughout the body) problems including immune system dysfunction, hormonal dysfunction, and an inability to effectively eliminate toxins from the body.

I remark in my book, FibroWHYalgia, that fibromyalgia should be referred to as "Systems Gone Berserk Syndrome." While I was poking fun at the inability to define our condition in just one word, the fact is that fibromyalgia does affect every part of the body. The fibromyalgia body reveals significant imbalances within each body system. Restoring balance is therefore not easy, but oh-so worth it.

I Remember Me Movie Review & Film Summary (2001) | Roger Ebert

 

I Remember Me Movie Review & Film Summary (2001) | Roger Ebert

 

Film convinces Ebert that CFS is real.

 

"TV comics still joke about the disease as a form of laziness. Ironic, isn't it, that Kim Snyder wasn't too lazy to make this film--while the CDC and the medical establishment are only now stirring into action."

 

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Ironic, isn't it, that patients aren't too lazy to write books and blogs and letters to elected officials begging for research funding, while doctors are too lazy to think beyond "depression" in looking for a diagnosis.......

 

 

DCAD -- May 22, 2013

Don't miss Disability Capitol Action Day on May 22, 2013 in Sacramento! http://www.scnetca.org/news-topics/?id=261 #dcad

Facebook Link: http://www.scnetca.org/news-topics/?id=261

 

Please tweet or Facebook the above...

How to Reduce Inflammation

 

5 Tips for How to Reduce Inflammation - KrisCarr.com

 

Many CFS patients have elevated C-Reactive Protein, evidence of infection or inflammation.

 

 

Preventing Hospital Errors

 

Top Hospitals, Top Medical Centers for Safety - Preventing Hospital Errors - AARP

 

 

6000 "never events" happen every MONTH just among Medicare patients

 

180,000 Medicare patients die every year from medical errors and hospital accidents

 

400,000 drug-related injuries occur each year in hospitals

 

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Some 80% of medical malpractice lawsuits are grounded in preventable error -- the problem is negligent doctors, not greedy patients.  Doctors need to think about what they're doing every step of the way, not operate on autopilot.